Living With Seizures

For those living with seizures associated with Lennox-Gastaut syndrome (LGS), medications such as antiepileptic drugs (AEDs) can help reduce the number and severity of seizures. But complete freedom from seizures is extremely rare for those living with LGS.1

Caring for someone living with LGS can be difficult. The challenges of LGS are many. But planning ahead may help prevent problems and ultimately make life easier. The LGS community has several suggestions for families who are living with LGS.

Taking steps for safety

Parents and caregivers can take steps to help ensure the safety of those living with LGS seizures. While having a seizure, a person can get hurt. But it is possible to prevent injuries.

Soften the environment

Keep sharp objects away and out of the bedroom. Blunt objects should be padded or removed. They could cause injury in the event of a seizure.

Protective helmets

People with LGS often wear safety helmets.2 Helmets can be purchased from several places:

  • Medical supply companies
  • Sporting goods stores
  • Rehabilitation departments of some hospitals

Helmet features to consider3:

Protective helmets Protective helmets

NOTE: If your child falls forward when having a seizure, buy a helmet with a face guard, face bar, or visor. If your child falls backward during a seizure, buy a helmet that protects the back of the head.3 Talk to your doctor about where to find custom helmets.

Home modifications

Small changes to your home can make life easier and safer for those with LGS:

Home modifications Home modifications

References:

  1. 1. NINDS Lennox-Gastaut syndrome information page. National Institute of Neurological Disorders and Stroke Web site. http://www.ninds.nih.gov/disorders/lennoxgastautsyndrome/lennoxgastautsyndrome.htm. Updated June 15, 2010. Accessed December 4, 2013.
  2. 2. Camfield P, Camfield C. Epileptic syndromes in childhood: clinical features, outcomes, and treatment. Epilepsia. 2002;43(suppl 3):27-32.
  3. 3. How to choose a protective helmet. Epilepsy.com. http://epilepsy.com/article/2014/3/how-choose-protective-helmet. Accessed April 22, 2014.
  4. 4. Safety at home. Epilepsy Foundation website. http://www.epilepsy.com/get-help/staying-safe/safety-home. Accessed Feb 22, 2016
  5. 5. Quality of life. LGS Foundation Web site. http://www.lgsfoundation.org/qualityoflife. Accessed May 1, 2013.
  6. 5. Lennox-Gastaut syndrome. Epilepsy Foundation of Victoria, Australia website. http://www.nevdgp.org.au/info/epilepsyf/LennoxGastautSyndromeLGS.htm. Accessed May 1, 2013.
 
 
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