Legal guardianship

Based on where you live, you may need to file a petition to become your child’s legal guardian, even after they turn 18. The rules can vary from state to state so it’s important to find out the regulations for your home state. Once you become their legal guardian, you can still care for and make decisions for your child even when he or she is legally an adult.

Need to apply for legal guardianship? Find out more based on where you live.

Deciding where to live

Some people with Lennox-Gastaut syndrome (LGS) are able to move to group homes. These homes may be a good option for your loved one, not only to receive the care they need, but also to meet other people with LGS.

Financial planning

Just as you regulate your own budget, it’s important to manage finances for your loved one with LGS. Managing and monitoring finances can help ensure that your loved one lives comfortably and can afford the LGS resources and treatments they need.

Adulthood transition checklist

As your child grows older, there are several important steps that you can take as a caregiver to help ensure a smooth transition into adulthood. This transition checklist can both help you prepare for your child’s next steps, and learn what you should discuss with their doctor.

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