Making the adult transition

You give so much of yourself to your child, and you’d do anything to set them up for a strong future. That’s why it’s so important to plan ahead as much as possible to prepare for their next steps as they transition into adulthood.

Legal guardianship

Based on where you live, you may need to file a petition to become your child’s legal guardian, even after they turn 18. The rules can vary from state to state so it’s important to find out the regulations for your home state. Once you become their legal guardian, you can still care for and make decisions for your child even when he or she is legally an adult.


Need to apply for legal guardianship? Find out more based on where you live.

Deciding where to live

Some people with Lennox-Gastaut syndrome (LGS) are able to move to group homes. These homes may be a good option for your loved one, not only to receive the care they need, but also to meet other people with LGS.

Financial planning

Just as you regulate your own budget, it’s important to manage finances for your loved one with LGS. Managing and monitoring finances can help ensure that your loved one lives comfortably and can afford the LGS resources and treatments they need.

Adulthood transition checklist

As your child grows older, there are several important steps that you can take as a caregiver to help ensure a smooth transition into adulthood. This transition checklist can both help you prepare for your child’s next steps, and learn what you should discuss with their doctor.

"Ashley has dealt with medical problems her whole life, but done it with so much grace. It’s quite impressive."

Meet Ashley, an adult living with LGS—and her dad, Adam.

Indication

BANZEL (rufinamide) is a prescription medication approved for adjunctive treatment of seizures associated with Lennox-Gastaut Syndrome (LGS) in pediatric patients 1 year of age and older, and in adults.

Important Safety Information

  • Patients with a history of Familial Short QT syndrome should not be treated with BANZEL. Talk to your healthcare provider if you are unsure if this affects you or your loved one. BANZEL has been shown to reduce the QT interval. Caution should be used when administering BANZEL with other drugs that shorten the QT interval.

  • All medications to treat seizures, including BANZEL, may cause suicidal thoughts or actions in a very small number of people, about 1 in 500. Call your healthcare provider right away if you or your loved one experiences new or worsening symptoms of depression, unusual changes in mood or behavior, thoughts or actions about suicide or self-harm, aggression, agitation, anger, anxiety, or irritability.

  • Use of BANZEL has been associated with side effects such as sleepiness or feeling tired, difficulty with coordination, dizziness, and problems with walking or movement.

  • Do not drive, operate heavy machinery, or do other dangerous activities until you know how BANZEL affects you. BANZEL can slow your thinking and motor skills.

    • Alcohol, in combination with BANZEL, may increase or worsen these side effects.

  • Call your healthcare provider if you or your loved one experiences a rash. This can be a sign of a more serious condition, such as multi-organ hypersensitivity reaction.

  • You or your loved one should take BANZEL only as prescribed. Do not stop taking BANZEL without first talking to your healthcare provider. Stopping BANZEL suddenly can cause serious problems.

  • Tell your healthcare provider about all the medications you or your loved one takes, including prescription and non-prescription medications, vitamins, and herbal supplements. Using BANZEL with certain medications can affect each other, causing side effects.

  • In studies, the most commonly observed (≥10%) side effects with BANZEL were headache, dizziness, feeling tired, sleepiness, and nausea.

Important Information for Women

  • BANZEL may make hormonal contraceptives (birth control pills) less effective. Additional nonhormonal forms of birth control are recommended when using BANZEL.

  • Healthcare providers should be informed if patients are pregnant or planning on becoming pregnant.

  • Also, BANZEL is likely to be passed through breast milk to the baby and could cause serious side effects in the baby. A decision should be made whether to discontinue nursing or discontinue the drug, taking into account the importance of the drug to the mother.

  • Patients who are pregnant are encouraged to enroll in the North American Antiepileptic Drug Pregnancy Registry. This can be done by calling the toll-free number 1-888-233-2334. Additional information about the registry can be found at www.aedpregnancyregistry.org.

There are risks associated with the use of BANZEL that you should know about. We encourage you to talk to your healthcare provider about these risks.

Please read the full Prescribing Information and discuss it with your doctor or healthcare professional.

To report suspected adverse reactions, contact Eisai Inc. at 1-888-274-2378 or the FDA at 1-800-FDA-1088 or www.FDA.gov/medwatch.

The health information contained herein is provided for educational purposes only and is not intended to replace discussions with a healthcare professional. All decisions regarding patient care must be made with a healthcare professional, considering the unique characteristics of the patient.

This Web site contains information relating to various medical conditions and treatment. Such information is provided for educational purposes only and is not meant to be a substitute for the advice of a physician or other healthcare professionals. You should not use this information for diagnosing a health problem or disease. In order for you to make intelligent healthcare decisions, you should always consult with a physician or other healthcare provider for your, or your loved one’s, personal medical needs. All quotes included in this Web site represent the individual experience of some doctors, some patients, and their caregivers. Individual responses to treatment may vary.

This site is intended for residents of the United States only. Any products discussed herein may have different product labeling in different countries.